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Arthurs Light Shines Purple
Beth Leach
Arthurs Light Shines Purple
Story
I’m Purpling Up in March to raise awareness and show support for everyone living with epilepsy.
As some of you may know our 4 year old son Arthur passed away from SUDEP after a battle with epilepsy.
SUDEP (Sudden Unexpected Death in Epilepsy) is a sudden and unexplained death in someone with epilepsy, often occurring after a seizure. It is one of the leading causes of death in people living with epilepsy, yet awareness remains low.
We are going purple to honour Arthur and to help raise awareness and fund researc so that other families may be spared this heartbreak.
Please support my efforts by making a donation and posting a message - every contributions counts!
Show Up, Team Up, Purple Up for Epilepsy
Epilepsy Action Australia
Established in 1952, Epilepsy Action Australia is the leading national provider of specialist epilepsy services for people living with epilepsy, their families, healthcare practitioners, and the broader community including support workers and teachers. Epilepsy Action Australia drives positive change empowered by the collective voice of people living with epilepsy to achieve the best possible outcomes. Our involvement with research paves the way for new interventions and treatments to improve and save lives. Epilepsy Action Australia established the National Epilepsy Line in 2019 as the only national epilepsy telehealth support service delivered by Registered Nurses specialising in epilepsy. It is the front-line service and gateway to our broader range of services. The organisation is primarily funded through donations, fundraising activities, philanthropic grants, and sale of third-party training courses.
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